Discover the untold stories of resilience, uncertainty, and emotional turmoil as we discuss Chronic Illness and Mental Health in the latest episode of Pediatric Meltdown! host Dr. Lia Gaggino is joined by The Women of the RoadMap Project; Carol Lannon, Lori Crosby, Robin Kinebrew, and Meg Didier as they dive deep into the struggles and triumphs of parents navigating the complexities of their children’s chronic diseases.
From navigating hospital admissions to tackling the daunting tasks of missed homework, these parents courageously share their journeys of finding strength amidst the chaos of mental health. This episode will highlight how crucial it is for medical sub-specialists to care about the topic of mental health in pediatric patients with chronic illnesses. They’ll talk about the responsibility the sub-specialists have to recognize the connection between physical and mental health and to incorporate holistic approaches into their practice.
By taking the time to listen, understand, and connect them with appropriate resources, sub-specialists can play a vital role in supporting their mental health journey. The Roadmap Project reminds us to strive to enhance our competence and confidence in addressing this important aspect of care because every child deserves comprehensive support, not just for their physical health, but for their Mental Wealth as well.
[05:21-21:07] The Origin of the Road Map Project
- Initiated after a conversation with the American Board of Pediatrics in 2016
- A collaborative effort between patients, families, and clinicians
- Aims to improve the emotional health of patients and families with chronic conditions
- Published using Google Docs and updated automatically every 5 minutes
[21:08 – 35:10] Subspecialty Responsibility and Competence in Addressing Chronic Illness and Mental Health
- Approximately two-thirds of respondents believe that addressing mental health is the responsibility of their subspecialty.
- Only 20% of graduating subspecialty fellows feel competent enough to address mental health.
- Competence levels vary among different subspecialties, with cardiology and nephrology showing the lowest confidence levels.
- The focus is on acknowledging, validating, and connecting individuals to appropriate mental health resources when needed.
[35:11 – 43:06] The Therapeutic Power of Asking
- How the normalize-ask-pause-connect approach can enhance patient care
- How asking can contribute to healing and understanding
- The role of asking in therapy and self-reflection
- The potential benefits of asking in various life situations
[43:07 – 1:01:45] Importance of Raising Awareness
- Clinicians reporting significant changes in their practice approach
- Creating a culture of continuous learning and professional development
- Increasing awareness of the impact on patient care and outcomes
- Empowering clinicians to prioritize emotional health in their practice
[1:01:46 – 1:09:00] Closing segment Takeaway
Links to resources mentioned on the show
You can reach The Roadmap Project
Website: Roadmap For Emotional Health
YouTube: The Roadmap Project – YouTube
Videos:
The impact of being Black while living with a chronic condition: Inpatient perspectives
Normalize+Ask+Pause+Connect by Dr. Erica Sood: Video Link and One Pager Link
Meg Didier Video: A Patient Shares How Clinicians Can Empower Patients by Asking About Emotional Health
Key quotes for Twitter:
“To tell your patients it’s okay not to be okay, that there are lots of things that you’re going through. You don’t have to be Superwoman, Superman, super patient. I think it’s important for them to relay that message to their patients, to their families. And, and it’s okay to ask for help.”… Robin Kinebrew on clinicians recognizing and validating patients/parents mental health
“I think that what I really want people to know is that my mental health has been much harder to manage than my physical health.”…Meg Didier on the importance of mental health in recovery
THANK YOU FOR YOUR SUPPORT!
Pediatric Meltdown was listed as a Top 20 Pediatric Podcast on FeedSpot.
If you’d like to connect with me, you can Tap the “What Are Your Thoughts” button at the top of the notes or you can find me on LinkedIn, Facebook, Instagram, and Twitter, or email me at [email protected]. To learn more about me visit https://www.medicalbhs.com/
LOVE WHAT YOU HEARD? Leave us a 5-star review so we can continue to provide you with great content. Share this episode and help people know more about children’s health and well-being.
